Endometriosis is a condition where tissue similar to the lining of the uterus is found elsewhere in the body (endometriosis.org). It affects 1 in 10 women and girls of reproductive age. Endometriosis can co-exist with other conditions such as Adenomyosis, PCOS and Irritable Bowel Syndrome (IBS), which increase flare ups and associated pains. Symptoms management through a personalized diet is a worthwhile option. An anti-inflammatory, low FODMAP, gluten-free and dairy-free diet reduces inflammation and manages IBS symptoms.
The Trinidad and Tobago Endometriosis Association (TTEA) works year-round to raise awareness but especially so in March as it is the month dedicated to endometriosis awareness worldwide. In light of this, the association held its 1st Endometriosis Walk and 2nd Women’s Health Fair on 30th March, 2019 at the Queen’s Park Savannah in Port of Spain with the theme ‘Endometriosis: Many Reasons, One Walk, One Cause’.
The Road Ahead for Endometriosis: Overcoming Challenges, Optimising Care
April 06, 2019
On 24th March, 2019 under the patronage of Former First Lady of the Republic of Trinidad and Tobago Mrs. Zalayhar Hassanali, the Trinidad and Tobago Endometriosis Association (TTEA) in partnership with the National Library and Information System Authority (NALIS) hosted the 1st Nurses’ Seminar on Endometriosis at the National Library in Port of Spain. Endometriosis is a condition resulting in the presence of endometrial-like tissue outside the uterus which can cause symptoms such as pelvic pain, excessive bleeding and infertility. Although this condition affects 1 in 10 women in Trinidad and Tobago, awareness and adequate funding remain low. Therefore, the theme of the seminar, Overcoming Challenges, Optimising Care, stemmed from the core goals of the Association as it seeks to raise awareness and improve health outcomes for endometriosis patients.
On Thursday 8 March 2018, International Women’s Day [IWD] was celebrated. The theme: Time is now: Rural and urban activist transforming women’s lives. In almost every pocket of the world, some degree of celebration in observance of IWD occurred. Amazingly, the endometriosis woman was no different; she joined the IWD movement for women’s rights, equality and justice. She participated in social media #metoo and #timesup campaigns. Perhaps, the fact that March is recognised as Endometriosis Awareness Month in a number of countries around the world is no co-incidence, especially since the disease endometriosis has the potential to etch away at the very core of womanhood, if she, the endometriosis woman permits it. Therein lies the question, who is the endometriosis woman?
The economists and social psychologists are yet to do their analysis in T&T, but with between five per cent and ten per cent of women of reproductive age affected by the painful and crippling effects of endometriosis (endo), the psycho-social and financial impacts are already being categorised alongside other better known non-communicable diseases.
Within recent times there seems to be a worldwide proliferation in endometriosis awareness year round with intensified activities concentrated in the month of March. March is recognized as Endometriosis Awareness Month in a number of countries around the world. Among all the awareness and education initiatives, the impact of endometriosis patients’ stories seems profound. Recognising this, endometriosis patients take to almost any available platform to share their experiences with the disease. Inarguably, hearing these experiences will usually form a lump in one’s throat and bring tears to his/her eyes. While the symptoms of the disease are wide-ranging, pain seems to be very commonly experienced by most patients: painful period, painful sex, painful urination, chronic pelvic pain, back pain, leg pain, painful bowel movement, migranes, and the list goes on.